About me

Hi, I’m Suzanne. In 1998 I was diagnosed with relapsing-remitting multiple sclerosis (RRMS). I was 19. At that time my symptoms were fairly mild. They consisted of some numbness and tingling in my extremities, several episodes of optic neuritis in both eyes at different times, and I felt tired a lot. My MS continued on that course for about six years. Then my MS began to become progressive and I now have few, if any, clear attacks and have some permanent disability.

Today I am 34 years old. My symptoms include weakness in my right leg and arm, foot drop, balance issues, MS fatigue, eye problems, overactive bladder, constipation, muscle spasms, and occasional nerve pain. I am on an oral disease modifying therapy and two other medications to treat specific symptoms.

I can’t walk long distances anymore. I use a cane, a foot drop device, and a mobility scooter. Typically I use the cane anywhere outside of my home or workplace, then I use my cane and my L300, and I use my scooter anywhere I might be required to walk around longer like at the grocery store. I also use my scooter in my home when I am too tired to walk at all.

I try to approach life with openness and a positive attitude. I see it this way, I have two choices; to live well despite having MS or not. The latter doesn’t appeal to me. Read I have Multiple Sclerosis to learn about my motivations for starting this blog to share my experiences.

I live in Las Vegas with my husband, my 13 year old Springer Spaniel, and my two cats. I work full-time. In my spare time I like to read, write, swim, hang out with my animals, and explore new places with my husband.

 

Nothing contained in this site is intended to serve in place of advice or treatment from licensed professionals. It is only a chronicle of what I’ve encountered in my continuing endeavor to live well despite having multiple sclerosis. This is the story of my survival. This is how I live through the difficult challenges presented by this disease.

I do not receive any compensation for mentioning products on this blog.

 

4 thoughts on “About me

  1. Hi!
    Although I was diagnosed with MS in 2007, I finally started my blog, which I have been “writing” in my head for a long time. I came across your blog while doing some research for a post and like you attitude. I would love to add your blog to my Blog Roll, but given a not so pleasant experience with a blogger “demanding” that I take her blog off because she didn’t care for my “sense of humor” (or lack of class as she put it) I decided I should ask first.
    Cheers!
    Meg

  2. Hi Suzanne,

    Have you seen the Living Like You website? It is designed to be a magazine-style content hub for people living with and impacted with MS around the world. We’re taking a raw look at the topics that people with MS often face but most MS resources don’t talk about – things like sex and MS, smoking, workplace discrimination, etc. With the types of blog posts you write, I thought it might resonate with you.

    If you’re interested in our content, feel free to share with your community or on your blog. We’re also on Facebook and Twitter.

    Have a great weekend,

    Sarah

    https://www.facebook.com/LivingLikeYou
    https://twitter.com/livinglikeyou
    http://www.livinglikeyou.com

  3. Hi, Suzanne — your blog and Twitter are fantastic resources. I’m the Social Media Coordinator for the nonprofit HelpHOPELive, which helps chronic and catastrophic illness patients to fundraise in their communities and online. We’re working on a Guest Post series for the HelpHOPELive Blog, and I was wondering if you’d be interested in collaborating on a post that will offer support and insights to the MS patients that we work with.

    Shoot me an email if you’d be interested! Hope you, your husband, your pup and your kitties are all healthy and happy this week.

    Emily

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